Urge the Senate to Support the Give Kids a Chance Act and Reauthorize the Rare Pediatric Disease PRV Program

Our fight to reauthorize the Rare Pediatric Disease Priority Review Voucher (PRV) Program continues, and we urgently need your help. On December 1, 2025, the House of Representatives passed the Give Kids a Chance Act (H.R. 1262) with strong bipartisan support. Now, we need the Senate to follow suit by passing the companion bill, S. 932.

The Creating Hope Act of 2012 launched the Rare Pediatric Priority Review Voucher (PRV) Program, a critical tool to spur the development of treatments for serious childhood diseases. Since its enactment, this program has helped drive 60 new therapies to market—bringing life-changing progress to more than 40 rare disease communities. In Duchenne alone, 7 of the 8 FDA-approved treatments were supported by this program.

We need advocates across the country to urge their Senators to support the Give Kids a Chance Act (S. 932) and ensure the PRV Program is reauthorized immediately.