ACTION ALERT: Tell the Senate – Protect Medicaid and the Families Who Rely On It
On May 22, the U.S. House of Representatives passed a broad budget reconciliation package that includes significant proposed changes to Medicaid, including stricter eligibility requirements and major funding reductions. These changes would have dangerous consequences for individuals and families living with Duchenne, Becker, and other rare diseases, many of whom rely on Medicaid to access the care and services they need to survive.
Medicaid is crucial to our community. It provides access to specialists, in-home caregivers, medical equipment, and therapies not typically covered by private insurance. Stripping funding and tightening eligibility could push vulnerable families out of the program entirely, disrupting care and threatening lives.
This week, the Senate is expected to vote on this legislation. It is critical that lawmakers hear directly from the rare disease community before they cast their votes.
Contact your Senators today and urge them to reject Medicaid cuts and protect this vital safety net.
Medicaid is crucial to our community. It provides access to specialists, in-home caregivers, medical equipment, and therapies not typically covered by private insurance. Stripping funding and tightening eligibility could push vulnerable families out of the program entirely, disrupting care and threatening lives.
This week, the Senate is expected to vote on this legislation. It is critical that lawmakers hear directly from the rare disease community before they cast their votes.
Contact your Senators today and urge them to reject Medicaid cuts and protect this vital safety net.



