Action Alert! Urge Congress to Continue Supporting Progress in the Fight to End Duchenne

Join us in thanking Congress for their support of FY 2025 Duchenne and Becker funding requests and ask them to continue prioritizing these critical needs as the federal appropriations process moves forward.

This year, thanks to the FY25 letters to the Appropriations Committees, 21 Senators and 80 Members of the House of Representatives joined in our effort to include language and funding requests in support of Duchenne and Becker. The Appropriations Committee heard our requests for FY25 and have included:

• Level or increased funding for the Centers for Disease Control and Prevention (CDC) muscular dystrophy program ($8 million in the House, $9 million in the Senate)
• Level or increased funding for the Department of Defense (DoD) congressionally directed medical research program (CDMRP) for Duchenne ($10 million in the House, $12.5M in the Senate)
• Language requests to the Centers for Disease Control (CDC), the National Heart, Lung, and Blood Institute (NHLBI) at the National Institutes of Health (NIH), and the Food and Drug Administration (FDA)
• FDA language focused on the standardization of approaches to collecting and analyzing patient experience data to inform clinical research design and regulatory reviews.

Now, we need your voice again. Contact your House and Senate members as soon as possible and urge them to continue making Duchenne patient care, public health, and research a top priority as the federal appropriations process continues.

Take action by entering your information below and sending a message to your Members of Congress.