2025-house-approps26
PPMD needs YOUR voice! We are calling on all members of our community to urge their congressional representatives to sign the FY26 Duchenne and Becker Muscular Dystrophy Appropriations Letter.
This critical letter, led by Representatives Doris Matsui (D-CA) and Troy Balderson (R-OH) in the House, requests vital federal funding and program direction to advance research, therapy development, and public health initiatives for Duchenne and Becker. Thanks to strong Congressional support, there has been real progress, but we cannot afford to lose momentum.
The letter asks for:
- $15 million for the Duchenne Muscular Dystrophy Research Program (DMDRP) at the Department of Defense.
- $10 million for the CDC’s Muscular Dystrophy Program to enhance research, surveillance, and newborn screening initiatives.
- Continued engagement and data-sharing improvements by the NIH and FDA to speed research and therapy access.
- Timely review of newborn screening for Duchenne.
Target Search
We need as many Members of Congress as possible to sign on before the May 2 deadline!
Contact your Representative today and Ask them to sign the FY26 Duchenne and Becker Appropriations Letter.
By taking just a few minutes, you can help secure the funding needed to continue lifesaving research and move closer to a future free of Duchenne and Becker muscular dystrophy.
Please note, we will send another alert when it is time to engage your Senators. Also please note, the “Quill” link included in the message only works for hill staffers, so do not be alarmed when it does not load for you.
Contact your Representative today and Ask them to sign the FY26 Duchenne and Becker Appropriations Letter.
By taking just a few minutes, you can help secure the funding needed to continue lifesaving research and move closer to a future free of Duchenne and Becker muscular dystrophy.
Please note, we will send another alert when it is time to engage your Senators. Also please note, the “Quill” link included in the message only works for hill staffers, so do not be alarmed when it does not load for you.
